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It’s really a matter of having conversations so that the professionals can identify where they can help and connect cancer patients to the kinds of services and programs that exist.”
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“One person may be worried about finances, the next about how to tell their children and another may be unsure how to manage from an emotional point of view. The goal of the health care professionals from that point forward should be to fulfill the patient’s most pressing needs and concerns, she says. “We must recognize that for most individuals, hearing that they have cancer is a life-altering moment.” It’s so important to getting through this process.” … They’re the best people to release your fears and questions to and get their support. And speak to other families going through it. But you need that support and that involvement with everybody. “It’s very easy to get that way because you’re situation becomes so different from the people and friends around you that you tend to pull away. “Make sure you don’t close yourself off,” she says. The family also participates in the Society’s annual Relay for Life, raising thousands of dollars for the cause. She says the Canadian Cancer Society has been a huge comfort by answering her many questions, directing her to support groups and helping with flights, hotel stays and taxis for Jordan’s hospital visits. Lisa Petingalo gets together with like-minded parents in her hometown several times a year and connects with others when she drops off Jordan at Camp Quality in Sudbury, Ont., every summer. Those who don’t can tap into community programs such as hospital cancer units and summer camps to connect with and learn from other parents and children experiencing similar issues. Those who have a support network through family, friends or school are fortunate, he adds. David Brownstone, a social worker with the Hospital for Sick Children’s pediatric brain tumour program, says it’s challenging for parents to look after their sick child while also managing other children’s questions and expectations, work responsibilities, the home (especially if the hospital is out of town) and ongoing day-to-day life stresses. Whatever treatment is necessary, it’s important for everyone involved to adjust to the new normal. “As things move forward, we’re probably going to be giving less therapy to the children who have a wimpy medulloblastoma and experimental therapy to those who have a very aggressive medulloblastoma.” Michael Taylor, a pediatric neurosurgeon at the Hospital for Sick Children and recipient of the Canadian Cancer Society’s 2009 Young Investigator Award for his cancer research.
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“Usually the more treatments you give, the higher the survival is but the lower the quality of life,” says Dr. This advertisement has not loaded yet, but your article continues below.